Event

Improving inclusion of children living with rare diseases through curriculum transformation

primary school children
Event
Improving inclusion of children living with rare diseases through curriculum transformation
-
Location
UNESCO Headquarters, Paris, France
Rooms :
Room VIII
Type :
Cat VIII - Symposia
Arrangement type :
Virtual
Language(s) :
French
Spanish
English

In line with the UN Agenda 2030 and its central promise to 鈥淟eave no one behind,鈥 the webinar aims to raise awareness of the impact of RDs on children鈥檚 learning and the curriculum transformations needed to include them in education. The event is organized by and co-organised with the and .

Panelists

  • HE Ir猫ne Esambo Diata, Minister Delegate to the Minister of Social Affairs, Humanitarian Actions and for Persons Living with Disabilities and Other Vulnerable Persons, Democratic Republic of Congo
  • Yao Ydo - Director, UNESCO-IBE
  • Anders Olauson - Founder and Chairman of 脜grenska鈥疐oundation
  • Flaminia Macchia - Executive Director of Rare Diseases International (RDI)鈥
  • Florence Migeon - UNESCO, Programme Specialist, Inclusive Education Expert
  • Gunilla Jeager, Psychologist, 脜grenska Foundation
  • Renato Opertti - UNESCO-IBE Senior Expert
  • Carlos David Pe帽a Aragon鈥- Head of Social Networks, Federaci贸n Mexicana de Enfermedades Raras (FEMEXER), lives Gaucher disease鈥(Mexico)鈥
  • Eda Selebatso鈥- Founder of Botswana Organization For Rare Diseases (BORDIS) - Mother of two children living with different rare diseases鈥(Botswana)鈥
  • Mark鈥疪ogers鈥- Parent of a young adult living with鈥疍iGeorge Syndrome (New Zealand)
  • Nikita鈥疺an Dijk鈥- University student and patient advocate living with Ehlers-Danlos syndrome鈥(New Zealand)鈥
  • Robin Yoon鈥- M.D. Candidate, Georgetown University School of Medicine鈥(USA)鈥
  • Sook Yee Yap鈥痑nd鈥疛aden Lim鈥- We Care, Journey - mother and son, Jaden lives with Growth Hormone Deficiency and Pituitary Microadenoma (15), and his brother lives with SMA Type One鈥(Malaysia)鈥